Its been a long time since the last time I wrote. I have been enjoying my days with my children and taking in all the little things we often take for granted. I am so lucky to be able to stay home with them and enjoy this time with them. In March, I had my DBS battery replaced for the first time. The surgery itself was not bad. When I came out of anesthesia, I saw the Medtronic tech, who adjusted my settings. My hand had been curled in again for some time and so it was tricky getting the settings right. I was twitching a lot and having a lot of movement in my left shoulder. They wanted to lower the settings after this surgery, to hopefully make the battery last a little longer this time. The twitching in my left side did not stop until they put the settings back up to 9Volts again, where it was before the battery change. I left the hospital that night, with my hand still curled in and feeling dizzy. We thought this was...
My life-long battle with Dystonia