I’m having a hard time accepting what is happening. I grew up loving sports. Softball and cheerleading was my life. I remember how upsetting it was when my shoulders started to dislocate and I had to miss so many days of practices, games and competitions. It was heartbreaking but I knew I’d get through it... and I did. I had dreams of playing catch with my kids and teaching them how to play ball. When my hand first started to curl in, I didn’t think too much of it and I kept thinking that if I just keep fighting, it will open. And it did. After my first dbs fixed all my symptoms it was easy to stay positive. I had ups and downs, good days and bad but for the most part my dystonia was gone for about 7 years. This time it’s different. When I had my dbs redone in January, I was very excited. My right side improved within a week and my left side did too, just not 100%. I knew it was helping my hand because it wasn’t as tight but I couldn’t straighten my fingers all the way. Everyon...
My life-long battle with Dystonia