When I had my DBS put in last year, for the third time, I had a positive attitude that it would help me but I also was having bad dreams that something bad was going to happen. I was anxious and scared the morning of my surgery but I went into the OR feeling pretty hopeful. When I woke up in the recovery room, I was so thankful that I was alive. I didn't know if my DBS was going to work, but I knew I made it through the surgery. Shortly after having my DBS turned on, my dystonia symptoms seemed to be improving. I was so excited to finally get some movement back and feel less pain. A few months after seeing my symptoms improve, I was told what my surgeon really thought. She told my mom and Jim after the surgery that there was a lot of scar tissue and she wasn't sure if it would work. It didn't seem to help in the OR when she turned it on like it did the first time I had it done. She did not think it would work this time. I was ...
My life-long battle with Dystonia