So my insurance company denied my surgery... TWICE. Its now up to me to fight. They told my surgeon that it is no longer her business and I need to appeal it myself. I sent letters and wrote urgent all over it. The person I spoke to told me if I wrote urgent they would give me an answer in 48 hours. I spoke to them on Friday and they said they'd have an answer this week. I spoke to them again this morning and they said they will have an answer in 30 days. I am trying so hard to be positive but things arent looking too promising. My next step is to turn to my secondary insurance. The doctor's office was supposed to contact them today, so we'll see. If both of them deny it, I will have to find a new surgeon in MA which I really don't want to do. I will have to start out from the beginning and have all the tests re-done and probably wont end up having it for months. It scares me to know how long it could take because of the amount of pain i am in. I cant thank my family enough for all of their support through this. Although they dont know what im going through, they can tell I am serious and it REALLY hurts. Some people just dont believe me. What I dont understand is why anyone would make this up. Would someone really make a fist for 3 1/2 years? I have a daughter to take care of and it sure as hell would be a lot easier with my hands!!! People make me so mad. Anyway, looking forward to Thanksgiving with my family and black friday shopping with my mom and sisters!! wahoo.
Some days its hard to find the words to explain what dystonia feels like. It's invisible to most people, yet it shapes every hour of my day quietly, persistently and often painfully. I don't share this because I want sympathy, I share it because awareness matters and too many people still don't know what dystonia is, let alone how much it can affect someones life. Dystonia affects my hands, feet, back and neck. My hands ache as though they've been gripping something for hours, even when they're resting. My neck strains as if theres a weight hanging from it and no amount of stretching helps. My feet cramp and curl making sonething as simple as standing still feel like a test of endurance. I've grown stronger in ways I never expected. Ive learned patience, determination and resilience. Ive learned to celebrate small victories, like waking up with a little less stiffness or being abke to open a jar of spaghetti sauce. Im sharing this because I want people to under...
Comments
Post a Comment