Skip to main content

Before you judge me, make sure you’re perfect

I’m overweight. I’m not happy about the way I look but I’m happy with my life.  Since Covid has attacked and pretty much made everything impossible, I have had a hard time. It started with the homeschooling and all us of trying to adjust. Then being told Cody was doing summer school. He does school on zoom three times a week, speech on zoom three times a week and speech outside of the house twice a week. He hates the zoom meetings and sometimes struggles to sit through it. Hailey gets bored when he’s doing it. I can’t bring them anywhere because they need masks and they’re little and hate them and it’s hot. I don’t have time to go grocery shopping, I don’t have time or motivation to work out. My dystonia is getting worse by the day and I’m pretty much just a fat crippled mess. I’m trying to think positive but it’s especially hard when people are judging your every move. People I don’t even like so I don’t even know why I care. What makes you so perfect? Because your healthy and can work out without being in pain? Because your thin and fit? Well happiness means more to me than that and I am way happier now, even with Covid and bad dystonia days then I ever was before.


My left foot, my left hand and my back are a mess. My foot is turned in so far it feels like my ankle is going to snap and I can’t get a shoe on my foot. So, I’ve been wearing flip flops but it looks ridiculous. I had an adjustment made on my dbs about a month ago and go back in two weeks. Hopefully I can get some relief. She did Botox in my hand and this time might try it in my foot. 


Anyway, there’s good stuff too. Hailey has been so good lately and has been making bracelets and raising awareness for dystonia . I am so proud of her. She is almost 10 already and going into 4th grade. 


Cody is doing well too! We had a scare last week when his neck started swelling and he was pretty sick. We ended up in the ER but he perked up and they said it was just a virus. He’s doing very well in school and can’t wait to see his friends again. I’m so proud of how hard he has worked through all of this! 


Jim and I are super excited to get married next year! Because of Covid, we had to postpone until May but that’s ok with us, as long as the people we love are able to join us! Jim’s job is going great and I’m so proud of all his hard work! 


Life is good. I’m enjoying my time with my kids every day but some days have been hard. Mostly with grocery shopping, school at home and getting to doctors appointments.


I will be glad when this is over but for now we’re making the best of it! I’m done letting people bother me when they look me up and down and judge. I am who I am because of what I’ve gone through and there’s no one else I’d rather be! 

Comments

Popular posts from this blog

Dystonia awareness

Some days its hard to find the words to explain what dystonia feels like. It's invisible to most people, yet it shapes every hour of my day quietly, persistently and often painfully. I don't share this because I want sympathy, I share it because awareness matters and too many people still don't know what dystonia is, let alone how much it can affect someones life. Dystonia affects my hands, feet, back and neck. My hands ache as though they've been gripping something for hours, even when they're resting. My neck strains as if theres a weight hanging from it and no amount of stretching helps. My feet cramp and curl making sonething as simple as standing still feel like a test of endurance. I've grown stronger in ways I never expected. Ive learned patience, determination and resilience. Ive learned to celebrate small victories, like waking up with a little less stiffness or being abke to open a jar of spaghetti sauce. Im sharing this because I want people to under...

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...

Why be normal?

For the last 17 years my hand has slowly been getting destroyed. Its been closed, open, dislocated fingers, and eventually everything about it was deformed. My first hand treatment was casting my fingers open but with dystonia this usually doesnt work. It was one of the worst pains I ever experienced and I had to go back and have the cast cut off that night. I had my first hand surgery in 2019 to "fix" some of the damage that was done from my dystonia. Little did I know that would turn into many more surgeries trying to relieve my discomfort and my anxiety of having a deformed hand. I wanted it to look normal so bad. I was so embarrased by how my fingers looked that I always had my hand in a sweatshirt pocket so I could hide it from the world. I never mind sharing my story to spread awareness but how embarrasing is it to drop groceries everytime you try to shop, or struggle to pick your toddler up. Over the last couple years I started seeing a new hand doctor that my mother...