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The Storm that won’t stop

Every day feels like a blur. I've been dizzy and lightheaded almost every day since the end of September. When I try to read anything, even just a book to Max, I have to open and close my eyes several times until I can see because when I first look at the page all the words combine into a cloud of chaotic letters that dont make sense. Every time I eat my stomach hurts so I try not to eat but then I feel even more lightheaded and nauseous. Its a cycle I hate to be a part of several times a day. My dystonia has been worse because I didnt get my injections yet but then the right side of my body started acting up and Ive been having trouble swallowing. My neurolist suggested I shut my DBS off until my appointment next week but within 24 hours my right foot was curled in. I decided to turn it back on but as soon as I did I lost control of my right arm and the right side of my face. Jim helped me switch some settings on it but when adjusting the left side of my body my right side went crazy. Something is not right and im wondering if all of this is because my DBS was not put in surgery mode during my pituitary surgery. I guess we'll see what happens next week. I have several appointments in February and Im hoping we can get some answers and figure out if all my symptoms are related or if its a combination of pituitary, gallbladder, dystonia and DBS complications. For now I'll continue to "act" normal while everything inside me feels like the worst storm Ive ever seen and I just hope every day it all stops.

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