This is a hard topic for me to write about, and something I don't share with many people but I feel like explaining how my mind works might help others like me not feel alone.
I talk a lot about my dystonia because most of my symotoms are visible and I get extremely embarrased about the way I look or walk. I try to hide my hand, which I'm usually successful at but hiding my foot isn't as easy. I walk off balance most of the time because my foot is almost turned completely sideways. I don't let it affect my speed or stop me from doing things which I guess is good but because of that it causes other issues with my knee, hip and back.
Anyway, I share that stuff so people know why I look the way I do and also to spread awareness.
What I don't share is the anxiety and worry I deal with every single day. I worry about little things like what to feed my family for dinner, how do I find time to clean my house, etc. I worry A LOT about the kind of mother I am and how I never feel like Im doing enough. I worry about how much my kids are getting outside, what theyre eating, their friendships, their health, their future. I worry about where we live, money, what car I drive. I worry about Jim, his job and health and feelings. I worry about how people view me, what I look like, my grey hairs coming in, my weight gain. I worry about my health but that is always last. I worry about not having any friends and feeling like no one likes me. I think about how I can change the way I am, be more social and outgoing but I dont know how because I worry about every single thing I do and say. I worry about what people will think about my opinion on something so I just agree with others or don't say anything at all.
Im done with worrying, I'm just trying to figure out how to actually stop it.
I have been doing as well as could be expected. I am back in Florida so it's nice to be with Ryan. Although I am still upset about the whole thing, I am trying hard to smile and not let it show. The spasms have returned and have gotten worse since the DBS was removed. When I suck on a piece of candy or ice, my throat tightens up. It's very scary but Im hoping it won't get any worse. My neck also twitches sometimes and my foot spasms have come back. My hand is curled in but if I think about it, I can straighten my wrist (not my fingers). The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open. I had never been so excited as I was that day. I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey. Hailey helped me ...
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