Skip to main content

A New Year

2010 brought me many difficult times but it also brought me the most amazing daughter in the world. There are no words to describe my feelings for her and although it wasn't planned, I wouldn't change a thing. She is my life, my world and everything I have ever dreamed of.

I have had many tough times with my dystonia. My spasms have become more frequent and annoying but mostly painful. While I'm sitting on the floor playing with Hailey my legs will just lock up. While feeding her, my neck has gotten stuck. It's the scariest thing I've ever experienced. The insurance here in FL is out of control but I have finally found something. I will be seeing a specialist at the end of January in Gainesville at the Dystonia clinic. I am hoping to get botox injections in my arm to relieve some of the pain and discomfort. I will no longer be able to breastfeed which breaks my heart because it is such an enjoyable bonding time for me and Hailey. But, without botox to help my arm, holding her will become harder and harder. I need to do this for Hailey even though getting her to have formula isn't easy... she hated her first bottle!!

Anyways, Hailey is doing great. We went to MA for Christmas and New Years so she could meet all of our family. She loved everyone and they all loved her. It was so good to finally show her off although it was very tough to say goodbye. She was a bit spoiled and now just wants to be held but thats ok because snuggling with her is my favorite thing to do.
She's growing so fast. Lately it seems like she's eating non-stop! She must be going through a growth spurt. She will be starting on cereal soon and before I know it she'll be crawling around! She's growing too fast but I am enjoying every minute of it.

I am very excited for 2011... watching my daughter grow, getting better and moving back to MA when Ryans done school. It's going to be an amazing new year.

Comments

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc...

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able ...