After a long battle with the insurance company, we have finally got things approved. My dad fought for me to get put on a PPO plan instead of an HMO so I could be covered out of network. Yesterday, he received a call telling him it all worked out and the surgery is all set. I'm pretty anxious and didn't sleep much last night. For some reason I never really thought it would happen. Now its all real and as happy as I am, I am scared to death. That feeling in my head after they drill that frame to me is sickening and thats all I can think of. But... I know this is all going to work out and I cant wait to have my hands back. I will hear more today, about a date and everything but I think its going to be either December 20th or 22nd. I am hoping for the 20th!! I'm not positive, but I think they will be doing both sides this time to help the dystonia on my right side too. I'll update everyone again when I hear more! Yay for good things happening, and 2012 is going to be a GREAT year, starting off with all my fingers! :)
I have been doing as well as could be expected. I am back in Florida so it's nice to be with Ryan. Although I am still upset about the whole thing, I am trying hard to smile and not let it show. The spasms have returned and have gotten worse since the DBS was removed. When I suck on a piece of candy or ice, my throat tightens up. It's very scary but Im hoping it won't get any worse. My neck also twitches sometimes and my foot spasms have come back. My hand is curled in but if I think about it, I can straighten my wrist (not my fingers). The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open. I had never been so excited as I was that day. I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey. Hailey helped me ...
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