Skip to main content

Breathing test

Last week I had a pulmanary function test done to see whats going on with my breathing.  The tech scared the crap out of me and told me it was abnormal and "something funky was going on."  She told me to call the next day to get the results.  I called on Friday and they didn't have the results yet.  Yesterday my breathing was really bad.  I was in so much pain in my chest and back and felt like my throat was closing up so I tried relaxing, shutting off my DBS and finally emailed my neurologist to see if he had any tips or if he had heard about the breathing test.  He said I had no major breathing abnormality and to go to the ER to test my oxygen level.  I didnt end up going to the ER but I was so scared because when this happens it feels like Im dying.  I was relieved I had no breathing abnormality but kind of irritated they scared me like that.  Today, my breathing is bad again.  I have to use every bit of energy I have trying to breathe so I have nothing left in me to do anything.  My chest muscles and my back hurt so bad, almost like a pulled muscle or something.  I brought Hailey to swim lessons this morning and it just takes so much out of me. 
I got so scared I tried calling the pulmanologist back to see if they had any more to say then my neurologist.  They told me I had restriction in my breathing and weakness in the chest wall.  I am going in tomorrow to talk to them about it in person.   At first she said it could be vascular disease but then she said usually overweight people have that.  She told me to try to relax and try taking deep breaths to calm down... easier said then done. 
So anyway... Im glad im not going crazy I just hope its nothing serious and something they can fix because its getting scarier and a bit ridiculous!! 

Comments

  1. Inda BlackwellMarch 13, 2012 at 2:43 PM

    So happy I stumbled upon your blog. I have general dystonia and my neurologist recently recommended DBS. I was surfing the web trying to find blogs written by other people with dystonia. Nice blog!! www.questofthenocturnalbaker.blogspot.com

    ReplyDelete
  2. asleeperApril 12, 2012 at 1:40 PM

    Thank you!

    ReplyDelete

Post a Comment

Popular posts from this blog

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...
13 comments
Read more

Updates ❤️

It's 430 in the morning and i wake up to Max's whimper over the baby monitor. I get up to go get him and the first thing I notice is that I cant open the door. My left hand is so weak I cant turn the door knob. I try with my right hand even though I have no feeling in it. As the door opens my forearm goes into spasm and causes excrutiating pain. i've had quite a few problems with my arms and hands over the years, but this is the worst it's been. The Botox wasn't working so we tried a new medication called xeomin and my left hand seems to be opening a bit, but it's completely useless because it's so weak. I can't do anything with it. My right arm has been affected by the dystonia, but also I have carpal tunnel so the two of those together also makes doing anything very difficult. Hopefully a DBS adjustment will help soon. After Max was born, I was diagnosed with a pituitary macro prolactinoma. I didn't know what it was at first, but then found ou...
Post a Comment
Read more

Be the best you that you can be

A few months ago I was feeling pretty lousy and every day I was noticing new symptoms. I was so exhausted I could barely drive and staying up to watch a show or play a game with Jim was impossible. My eyes started giving me problems and I was getting dizzy quite frequently. When I tried to read, all the words in a paragraph bunched up into one big blur. I was overweight but couldn't find the motivation to even walk to my mailbox to try to lose some weight. It was the worst I ever felt and it was causing me to be miserable and not be the mother and wife I needed or wanted to be. I had an appointment scheduled for a physical so I decided to talk to my doctor. She told me that fatigue can be caused from so many things and she would do some blood work but she suspected it was just from having a baby and getting muscle spasms from my dystonia. I knew it was more than that but figured I would just wait and see what the blood work showed. Not long after my appointment I started gettin...
Post a Comment
Read more