So I just realized I never posted about my eyes. Half of you probably think ive gone blind by now. Anyway, I went to Mass Eye and Ear in Boston a couple weeks ago. They did a very thorough eye exam as well as a field study. The field study was very bad... this is what my other doctor had told me too. This doctor, though, thinks it was bad beeause of my involuntary hand movement. Maybe I pressed the buttons at the wrong time or something. In other words, he does not think I am going blind. I was so scared I was losing my eye sight!! I do however have facial dystonia that the eye doctor in Boston noticed. My right eye and right side of my mouth kind of twitch. Some people may think Im winking at them haha. This doctor even told me I dont need to wear my glasses all the time...just to drive and watch tv. Thank goodness! I am going back in about a week to have a manual field study to see if the results are any better. Ryans taking the day off so we can bring Hailey into Boston for the day before my appointment! It should be a fun day as long as I get good news again!
I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc...
Thanks for stopping by my blog. I first stumbled upon your blog post about being pregnant with dystonia. Now I am pregnant with dystonia and looking for any source of inspiration. Your blog is awesome and so informative. I too am trying to be proactive and blog about living with dystonia as well. Keep up the great work!!! www.questofthenocturnalbaker.blogspot.com
ReplyDeleteBeing pregnant with dystonia was scary at first but for some reason, most of my symptoms went away during those 9 months. I had a lot of pain and some problems during labor but it was worth it when I saw my baby girl!
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