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update

For some reason I thought these nine months were going to be great.  I thought I was going to have little to no symptoms and everything would be perfect.  At the beginning of the pregnancy I felt pretty good and the only real problem I had was my back but I thought it was because of the pregnancy itself more then the dystonia.  Im starting to think otherwise.
My back hurts so bad I can barely step on my left leg.  My left foot has been curling in and today my back is pulling in making it difficult to do anything.  I have two birthday's to shop for and grocery shopping to do and I just cant seem to get to the store because I am in so much pain.  I dont know if I should see my neurologist, my ob, walk or just lay on a heating pad.  I thought walking was good but Hailey doesnt sit in the stroller so walking and carrying a 22 month old probably isnt great for the pain.  So, any way if anyone out there has any suggestions for me that'd be great!  Lets hope and pray the pregnancy gets easier instead of harder! :)
Here's to baby #2, its all worth it!!

Comments

  1. MarleneJuly 30, 2012 at 1:43 PM

    Mandi, do what is best for you. don't worry about the shopping....ask hubby-to-be to do that...or maybe the grocery store can deliver. I dont know if this will help you, but with my third baby, I meditated a lot. I focused on breathing and visualization. In the end it helped me tremendously.

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  2. asleeperAugust 2, 2012 at 12:37 PM

    thanks Marlene, I will try I just feel like I still have to do so much and its a bit overwhelming.

    ReplyDelete
  3. bionicrunnerAugust 3, 2012 at 12:23 PM

    Hey Mandi - it's been a while. I know we've discussed this but does your neurologist allow you to take any medications during pregnancy? Are there any safe ones? Does botox help you? I know of a woman who has dystonia, stopped her meds but continues Botox and has had successful pregnancies. I truly hope you feel better.

    You know, I'm not heartbroken about not being able to go off of my meds -- i've never had a desire to bear children. But I know my husband wants to had kids so I wish I could make that happen. Problem is, even with DBS, botox and oral meds, the left side of my nexk gets so tight I sometimes cannot even swallow. It's very scary. I always have nightmares about going on vacation and forgetting my baclofen or klonopin. I always fear when i get a script for a new fill the pharmacy will call and tell me they are out.

    Oh, one other question, can you have ultrasounds with your pacemaker(s)? I was told I could not. So much contradicting information out there... and no one is on the same page.

    Anyway, feel better!

    ReplyDelete
  4. asleeperSeptember 9, 2012 at 6:57 PM

    Hey! Im sorry it took so long to respond. I have not had botox since being pregnant, it neveer really helped my hands so I never really considered it for anything else, but maybe next time I see my doctor I will mention it to him. I wasnt on too many meds before getting pregnant but its hard not being able to take something if I do get "stuck" or cant sleep at night.

    I have had 2 ultrasounds and have not had any problems with my batteries. Everything seems to be ok. I have a lot of pain and some problems some days with my neck, feet and hands but most days I am pretty good.

    I hope you are doing well and hope to talk soon!!

    ReplyDelete

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