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My left hand disaster


Friday was a hard day.  It was the day I had been waiting for since my surgery... to get my cast off and find out what was done to my hand.  My arm was itchy from the cast and I couldn't wait to have relief.  When I got there, the medical assistant cut the cast off and removed my stitches and almost immediately I wanted the cast back on. My arm started to have spasms and the pain was horrible. I got really light headed and nauseous then ended up laying down on the bed.  I started to cry because my arm felt dead, I couldn't lift it and I had no feeling in my thumb.  The doctor came in, laughing, and I started asking questions...What was done? How long will the pain last? Will I get the feeling back in my thumb? The answer to every question was "I don't know." I burst into tears again and went to OT to get a new brace made.  I cried while I walked over there, mostly because of disappointment but also because of pain and the fact that I had to use my other arm to hold it up.  They made me a brace to support my wrist and a separate one for my fingers.  As soon as I left, the one on my fingers just slid off.  There was no way for it to stay on my hand.
It's been 4 days and I still cant take the brace off and hold my arm up on my own. The pain is unbearable and my fingers and wrist just curl up again. My next step is a second opinion to see if what was done was a mistake and more damage was done.  I am scared of what my hand will be like in the future but all I can do is hope and pray that someday it will be normal again. 

The Dystance4Dystonia 5k race/fun walk will be held in Nashua, NH at Mine Falls Park on May 2, 2020. Thank you for your support and I hope to see you all there.

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