Skip to main content

Dystonia won’t stop me

 


My dystonia was getting bad again, I was overweight and unhappy with how I looked. I spent most days feeling sorry for myself and just thinking of every excuse I could to not change. I didn’t have the time to workout or the money to buy healthier foods. I didn’t have the energy to cook good meals and I was in too much pain to get up and do something. I never took the time to think about my own body or my own health and I never thought to change my whole lifestyle.

On New Year’s Eve, I saw a picture of myself that my mom took and was so unhappy with the way I looked that it brought me to tears. That week I started working out every day with videos on YouTube. The week after I joined weight watchers. The week after that we bought a treadmill and I started walking every day. I changed the way I drink my coffee, I stopped drinking soda, and I stopped feeling sorry for myself. I got up and moved and this morning I was down 12lbs since January 6th. I am so happy to say I’m losing weight but what’s more important is the way I feel. I feel so much happier and energetic. I could not have started this and continued if it wasn’t for the support of my family. Jim joined weight watchers with me so it’s been a lot of fun. My kids have also been great with not bugging me while I’m working out and loving all the new meals I’ve been cooking.

My dystonia is still bad some days but I power through the pain and I will not let it stop me. I’ve been going to PT so my hand is getting better and getting Botox every 3 months to help with my hand and foot spasms. 

I’m very motivated to keep going, this healthier life has made me feel less bloated, my clothes fit better and I have so much more energy. I have so many goals to aim for and I can’t wait to share them! 

Thank you for reading and for all the love & support ❤️

Comments

Popular posts from this blog

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...

Updates ❤️

It's 430 in the morning and i wake up to Max's whimper over the baby monitor. I get up to go get him and the first thing I notice is that I cant open the door. My left hand is so weak I cant turn the door knob. I try with my right hand even though I have no feeling in it. As the door opens my forearm goes into spasm and causes excrutiating pain. i've had quite a few problems with my arms and hands over the years, but this is the worst it's been. The Botox wasn't working so we tried a new medication called xeomin and my left hand seems to be opening a bit, but it's completely useless because it's so weak. I can't do anything with it. My right arm has been affected by the dystonia, but also I have carpal tunnel so the two of those together also makes doing anything very difficult. Hopefully a DBS adjustment will help soon. After Max was born, I was diagnosed with a pituitary macro prolactinoma. I didn't know what it was at first, but then found ou...

Be the best you that you can be

A few months ago I was feeling pretty lousy and every day I was noticing new symptoms. I was so exhausted I could barely drive and staying up to watch a show or play a game with Jim was impossible. My eyes started giving me problems and I was getting dizzy quite frequently. When I tried to read, all the words in a paragraph bunched up into one big blur. I was overweight but couldn't find the motivation to even walk to my mailbox to try to lose some weight. It was the worst I ever felt and it was causing me to be miserable and not be the mother and wife I needed or wanted to be. I had an appointment scheduled for a physical so I decided to talk to my doctor. She told me that fatigue can be caused from so many things and she would do some blood work but she suspected it was just from having a baby and getting muscle spasms from my dystonia. I knew it was more than that but figured I would just wait and see what the blood work showed. Not long after my appointment I started gettin...