Skip to main content

Choose to have a good day

 Every day, you have a new opportunity to change. It’s a new day and it’s up to you to decide if you’re going to be happy or not, if you’re going to work hard and push for something or if you’re going to sit back and feel sorry for yourself. We all experience both of these things at one time or another.  Some days i wake up motivated and ready to take on anything that’s thrown at me. Some days I walk ten miles, I drink a lot of water, I’m happy and I don’t let little things bother me. Other days I wake up 18 times over night with a throbbing hand and then finally drag myself out of bed and think of every excuse not to work hard that day. Every little thing frustrates me, I drink coffee and monster energy drinks all day hoping at some point I snap out it, but most times I end up crying, dealing with the bad day and eventually going to bed hoping for the next day to be better.


Dystonia is obviously a big part of my life and most of the time when I’m not feeling great it’s because of the dystonia. But I’m more than that. I am a wife, a mother, a daughter, a sister, a friend. I try my hardest to be good at these roles and not let dystonia define me. 


The problems I’ve had lately with my hand are a result of dystonia but it’s not the Dystonia that’s affecting it now. I believe I have some nerve damage and I think it’s safe to say I’ll never use my hand again. I try not to let it bother me but every day I’m reminded of this problem. I go to put the dishes away and drop a plate. I go to do my daughters hair and my fingers don’t move. I go to the drive thru at Dunkin’ Donuts and drop my coffee all over me and my car because My fingers lock. Sure, I’ve learned over the years some tricks to use my other hand and most of the time i do ok. But, some days I just want my hand to work. I just want the pain to go away. Sometimes I want to scream and just tell someone that IT SUCKS.


I realize most people in my life are sick of hearing about it so I try to hold back with my complaining. But this is my blog so I’m going to complain and if you don’t want to read it.. you don’t have to! 😊


I don’t know what the next step is. A new doctor? Medication? Physical therapy? More surgery? Nothing? I honestly don’t know what to do. But I’m working on it. And while I work on it.. I’m also still working on getting to 500 miles, I’m working on a nutrition degree and losing 25 more pounds. I know it will be hard but I also know that I’m capable of doing it, and so I will! 


So, today I’m choosing to have a good day, I’m choosing happiness and I’m choosing motivation and success. 

Comments

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc...

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able ...