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Botox!

 


I’ve been getting Botox for about 12 years. It took about 10 years and several doctors before it worked. I’m convinced it’s the amount and place it’s given. Also, female doctors are just better and I finally found one!

The problem I was facing is that it wears off after about two months but I could only get it every three months because of insurance reasons. So I would always go a month with my hand and foot curled in before I could get relief again. It’s so frustrating and that month is usually pretty hard on me. 

Over the last couple years I have been trying to fix the damage that was done to my hand after it was clenched for so long. After my last surgery, my Botox wore off and my hand curled into a fist. I found out this week after having my fifth hand surgery that everything done last time had come undone. I’m unsure if this was due to the Botox wearing off or something the doctor did or didn’t do. I couldn’t be happier or more thankful for my neurologist, who has always done everything possible to help me and for finding a way for me to get an extra dose of Botox this time so hopefully my hand stays open long enough to heal.  I am already feeling some dystonic symptoms in my foot so chances are if I didn’t get the Botox my hand would be curling in less than a week after surgery. 

Everything I do to try to fix this is based on time. I’m always trying to schedule things around when it will curl back in. Stress makes my symptoms worse so I’m just trying not to get too stressed about Christmas to make things worse. Managing stress is the hardest part. Sometimes I get stressed out just thinking of my symptoms coming back, which is never helpful. My hope is that this will be my last surgery & I’m hoping my dbs starts working soon so I can stop relying on Botox. 

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