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Frustration

 Some people say just wake up in the morning and decide to have a good day. Sometimes this is true. Instead of moping and complaining about little things, you can choose to look at life differently, accept the imperfections and just “be happy”. I do think there are many things, though, that make it hard to force yourself to always be in a good mood.  Getting rest… sometimes it’s hard because life is busy but sleeping a proper amount is so important for your health and happiness. Our diets also impact how we feel. Healthy eating will give you more energy, less bloating and overall just make you feel better. But, the number one thing that affects my mood is pain. Every single day I try to push through it, I try to “live” like I would if the pain wasn’t there. When I do this, I end up taking 2-3 days off from doing anything because that one day I felt motivated, I did too much. The frustration I have is so intense it sometimes makes me angry and in a bad mood. I want to jog, I want to work, I want to clean, I want to play catch with my kids, I want to cook. In my head, I’m so motivated to do these things but when the time comes to do it, I just want to cry. 

The most frustrating thing is it shouldn’t be like this. I have had DBS surgery THREE times. Why doesn’t it work? Why won’t it help me? Every day I realize how much my pain is also affecting those around me. I am no fun to be around and I’m trying so hard to just change the way I look at life. This is just how it’s going to be and I need to learn to live with it. 

I have had dystonia for a large part of my life. I wasn’t diagnosed until I was 22 but I believe what I experienced before that was related. I found out shortly after being diagnosed that there is no cure, so I have to just try to treat the pain and symptoms as they come. I’ve tried every medication, Botox injections and DBS. I’ve had relief, but I still have dystonia.

It is my mission to share with everyone I know what dystonia is so more people are aware and more research can be done. This is why I host a walk every year, and why this year I made it a timed 5K run to hopefully attract more people. Every dollar raised goes towards research. And I hope someday a cure is found so no one else has to deal with this. 

The run/walk will be held at mine falls park in Nashua NH and there are many ways for you to help!

  1. Register to walk/run (timing & tshirt included if registered by 4/25)
  2. Make a donation (this is good for people who want to help but cannot attend)
  3. Become a sponsor (perfect for companies, your company name will be on the tshirt and/or banner, you will get admission to do the run and you’ll get a shirt)
  4. If you wish to help but cannot make any donations, please share with your friends. You never know who might want to come to a family fun event!


There will be many raffles and kids are welcome! Click the link below for more information. 


https://dystonia-foundation.org/product/nashua-walk-run/?fbclid=IwAR1igKEYDQ6qVlb_kpjUwzDQedC_05g36e23jHYbE4b0PnGoGn1E7QAxetA

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