A couple days ago I was going to the store with Hailey. Sometimes this is a lot of work by myself but for the most part I do okay. Well we got to the store and I went to take the stroller out of my trunk to put Hailey in. My left shoulder popped so loud and my arm just dropped. Immediately, my fingers went numb. Not only was this very painful but also very frustrating. Now, I was kind of stuck and had to either lift the stroller again to put it back or lift Hailey (or eventually do both). I was scared but I have learned over the years to do many things with one arm. I know this is very annoying to everyone around me because it happens so often but it is very annoying to me as well! I have been icing it off and on all day every day since it happened. This morning when I woke up, after sleeping with the ice pack on I felt okay, and decided to try to pack some stuff since we will be moving soon. Not such a good idea. I am so bored just sitting here but I guess thats all I can do. My whole arm is killing me more than ever and I just can't tell if its dislocated or not. I am so frustrated and hope it just moves its way back into place so I can get on with my life!!
Some days its hard to find the words to explain what dystonia feels like. It's invisible to most people, yet it shapes every hour of my day quietly, persistently and often painfully. I don't share this because I want sympathy, I share it because awareness matters and too many people still don't know what dystonia is, let alone how much it can affect someones life. Dystonia affects my hands, feet, back and neck. My hands ache as though they've been gripping something for hours, even when they're resting. My neck strains as if theres a weight hanging from it and no amount of stretching helps. My feet cramp and curl making sonething as simple as standing still feel like a test of endurance. I've grown stronger in ways I never expected. Ive learned patience, determination and resilience. Ive learned to celebrate small victories, like waking up with a little less stiffness or being abke to open a jar of spaghetti sauce. Im sharing this because I want people to under...
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