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Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive!
A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently.
In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able to take my medication for the dystonia and the spasms have been happening more often. My belly is growing and my back is killing me! But I am due in September with a baby girl and I hope she is my miracle that cures my dystonia.

I'll keep you all updated :)
Bye for now.

Comments

  1. UnknownMay 16, 2010 at 8:29 AM

    I think this will be an intersting topic to follow. I am right here with you.

    ReplyDelete
  2. kristyMay 16, 2010 at 9:16 PM

    I have high hopes that little Miss Hailey is going to be the miracle that cures the dystonia!

    ReplyDelete
  3. Marilyn TremblayMay 16, 2010 at 9:41 PM

    I'm convinced that your daughter is working her little magic as we speak. She is going to be your life saver, I just know it.

    ReplyDelete
  4. Carlie24May 26, 2014 at 4:10 AM

    Hi!
    I'm very much interested in your story. I got married in January and have dystonia in my hands. I am a school teacher so my hands are very important to me and at the moment I am on three types of drugs to help. I know a fair bit about dystonia as my mother has it in her neck. She had DBS which has improved her life so much but now she has it in her throat.

    In the future my husband and I would love to have kids but I am worried about coming off the drugs and not being able to work. If you have any advice please do tell. I am considering DBS but after seeing mum go through it, I am worried about the surgery and then also just having to have something in my body for the rest of my life.

    Thanks for your time,
    Carlie

    ReplyDelete
  5. karenNovember 18, 2018 at 3:43 PM

    I am Karen from Canada, I once suffered from cervical dystonia,for more than 30 years , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly had jerky head movements and muscles contract ,this ailment was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Jessica on how her daughter was been cured from cervical dystonia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again for more information you can email him on drwilliams098675@gmail.com for help

    ReplyDelete
  6. JESSICAFebruary 22, 2019 at 9:20 PM

    ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
    My daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort . She usually tells me she haves jerky head movements . This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia , do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.

    ReplyDelete
  7. karenMarch 15, 2019 at 6:00 PM

    I am Karen from Canada, I once suffered from cervical dystonia,for more than 30 years , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly had jerky head movements and muscles contract ,this ailment was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Jessica on how her daughter was been cured from cervical dystonia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again for more information you can email him on drwilliams098675@gmail.com for help .

    ReplyDelete
  8. Shivam mittalNovember 13, 2020 at 12:11 AM

    Keep sharing. thank you.

    Dystonia Treatment in UAE

    ReplyDelete

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