Yesterday I went to my doctor to have an ultrasound and check the baby. She is doing wonderful and I got a 3D ultrasound so I could see her little face and button nose. My doctor wanted me to see an infectious disease doctor because my hand is becoming raw. I went there today, which ended up being a waste of time. She told me I need to see a neurologist ASAP! Well.. no kidding. I've been trying to see a neurologist since last May. I found a neurologist here in Florida that takes my insurance and had an appointment and everything... too good to be true. They changed their mind and decided they didn't feel like dealing with a high risk pregnancy, so they won't see me. I guess I'll just wait until my whole body is a spasm.. then I'll worry about it.
I have been doing as well as could be expected. I am back in Florida so it's nice to be with Ryan. Although I am still upset about the whole thing, I am trying hard to smile and not let it show. The spasms have returned and have gotten worse since the DBS was removed. When I suck on a piece of candy or ice, my throat tightens up. It's very scary but Im hoping it won't get any worse. My neck also twitches sometimes and my foot spasms have come back. My hand is curled in but if I think about it, I can straighten my wrist (not my fingers). The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open. I had never been so excited as I was that day. I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey. Hailey helped me ...
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