I got a letter in the mail yesterday saying my insurance has ended. I do not qualify anymore. Even though no one wanted to take my insurance anyways its still annoying that I don't qualify anymore. I don't know what I am going to do. I guess any kind of medication and/or botox is out of the question now. Hopefully these spasms slow down a bit. 9 more months in Florida then maybe I can get insurance in MA and go back to my neurologist there. I'll just keep my head up and hope it doesn't get any worse before that!
I have been doing as well as could be expected. I am back in Florida so it's nice to be with Ryan. Although I am still upset about the whole thing, I am trying hard to smile and not let it show. The spasms have returned and have gotten worse since the DBS was removed. When I suck on a piece of candy or ice, my throat tightens up. It's very scary but Im hoping it won't get any worse. My neck also twitches sometimes and my foot spasms have come back. My hand is curled in but if I think about it, I can straighten my wrist (not my fingers). The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open. I had never been so excited as I was that day. I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey. Hailey helped me ...
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