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Crazy Eyes

It has been almost six years since my DBS was placed.  The most horrifying experience but so life changing.  My days got better over the years as my hands began working again.  With the exception of a couple bumps in the road, my life has drastically improved.  My happiness escalated and I felt so free and able to move and live my life to the fullest.  Without DBS, I can't imagine how difficult it would be to raise my children, to change them, drive them, play with them and hold their little hands as they learn new things.
Over the last several months, my eyes have really been giving me a lot of trouble. The pain shoots through my eyeballs like a knife.  The room spins and fills with stars. My neck aches and my head feels like it weighs nearly 100 lbs. I have been to several eye doctors, neurologists, neuro eye doctors, and my primary care doctor and no one really knows what this is from or what is causing it.  Some days I want to rip my DBS out of my head and see if these symptoms get better.  Then... I remember the pain and stiffness I dealt with before having this done. Honestly, what is worse?  No use of my hands and feet or this crazy eye pain?  I really don't know.  I can't remember the last time I slept through the night or the last time I could look side to side without feeling like I was going to lose my balance. I am hoping with time this gets better and we can figure out the reason for it and how to fix it.

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