Skip to main content

whats next?

So my insurance company denied my surgery... TWICE.  Its now up to me to fight.  They told my surgeon that it is no longer her business and I need to appeal it myself.  I sent letters and wrote urgent all over it.  The person I spoke to told me if I wrote urgent they would give me an answer in 48 hours.  I spoke to them on Friday and they said they'd have an answer this week.  I spoke to them again this morning and they said they will have an answer in 30 days.  I am trying so hard to be positive but things arent looking too promising.  My next step is to turn to my secondary insurance.  The doctor's office was supposed to contact them today, so we'll see.  If both of them deny it, I will have to find a new surgeon in MA which I really don't want to do.  I will have to start out from the beginning and have all the tests re-done and probably wont end up having it for months.  It scares me to know how long it could take because of the amount of pain i am in.  I cant thank my family enough for all of their support through this.  Although they dont know what im going through, they can tell I am serious and it REALLY hurts.  Some people just dont believe me.  What I dont understand is why anyone would make this up.  Would someone really make a fist for 3 1/2 years? I have a daughter to take care of and it sure as hell would be a lot easier with my hands!!!  People make me so mad.  Anyway, looking forward to Thanksgiving with my family and black friday shopping with my mom and sisters!! wahoo. 

Comments

Post a Comment

Popular posts from this blog

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...
13 comments
Read more

Updates ❤️

It's 430 in the morning and i wake up to Max's whimper over the baby monitor. I get up to go get him and the first thing I notice is that I cant open the door. My left hand is so weak I cant turn the door knob. I try with my right hand even though I have no feeling in it. As the door opens my forearm goes into spasm and causes excrutiating pain. i've had quite a few problems with my arms and hands over the years, but this is the worst it's been. The Botox wasn't working so we tried a new medication called xeomin and my left hand seems to be opening a bit, but it's completely useless because it's so weak. I can't do anything with it. My right arm has been affected by the dystonia, but also I have carpal tunnel so the two of those together also makes doing anything very difficult. Hopefully a DBS adjustment will help soon. After Max was born, I was diagnosed with a pituitary macro prolactinoma. I didn't know what it was at first, but then found ou...
Post a Comment
Read more

Be the best you that you can be

A few months ago I was feeling pretty lousy and every day I was noticing new symptoms. I was so exhausted I could barely drive and staying up to watch a show or play a game with Jim was impossible. My eyes started giving me problems and I was getting dizzy quite frequently. When I tried to read, all the words in a paragraph bunched up into one big blur. I was overweight but couldn't find the motivation to even walk to my mailbox to try to lose some weight. It was the worst I ever felt and it was causing me to be miserable and not be the mother and wife I needed or wanted to be. I had an appointment scheduled for a physical so I decided to talk to my doctor. She told me that fatigue can be caused from so many things and she would do some blood work but she suspected it was just from having a baby and getting muscle spasms from my dystonia. I knew it was more than that but figured I would just wait and see what the blood work showed. Not long after my appointment I started gettin...
Post a Comment
Read more