My foot has now been curled in for nearly a month. My physical therapist cant really get it straight. My ob sends me to my neurologist, who sends me to PT, who sends me back to the neurologist. Im not sure if no one knows what to do or if no one wants to deal with it because Im pregnant. My neurologist has told me that the only real option is to admit me to the hospital for a few days and try changing the DBS settings. I would have to be in the hospital so thet could monitor me and make sure the baby was okay. The biggest risk is that the dystonia could move into my abdominal muscles. The chances of this happening seems slim to me since Ive never really had symptoms there before but I dont know. The risks are very unclear because there hasn't been enough people in this situation. I would think if the symptoms moved into my abdomen, we could change the settings back to where they are now. I am not sure what to do because my foot is causing me to have knee and hip pain fro
My life-long battle with Dystonia