Swimming Against The Current

Well its been quite the ride here. Yesterday, I was planning on going home all day. Even though no doctor or anything came to see me until after 3pm, I was still hopeful. They kept telling me they were waiting for Infectious Disease to come tell me what antibiotics I have to go home with. I think he finally came just after 4:00 and said the infection wasn't that bad and I didn't need the picc line, just oral antibiotics. I was veery happy because now I could hold Hailey and get the hell out of here!! Once again, too good to be true. A few minutes later, the PA came in and said that the neurosurgery team didn't see eye to eye with Infectious disease and they still wanted me to have the picc line. They said I've come too far and they want to be aggressive and save this! I was happy with that because I feel I've come to far too and I do not want to start over!! So, anyway I didn't go home yesterday. They had to do some research to see what meds to send me

Everything was going great. I could finally see an end in sight. My hair was growing back into an awkward, yet longer stage and beginning to cover atleast one of my scars. My insicion on my chest was beginning to finally heal and my hand was beginning to open. I was the happiest girl in the world knowing I could open my hand after having it closed for 3 years. It felt like a miracle. I should of known this was too good to be true. Last weekend, I bumped my head on the hood over the stove after trying to plug my phone into the wall right next to it. Who knows how I did it but all last week the incision began getting ugly. Yesterday I decided to ask Jenn to take a look since she's an RN, I knew she could help me out. She squeezed it and said she really didn't like the looks of it and I should call the doctor. After calling my neurosurgeon, I found myself driving back to the hospital so they could take a look. My mom, Hailey and I walked into the ER, thinking we would b

I knew when this happened to me that it wasn't going to be an easy thing to fix. I remember sitting in the physical therapists' office and she kept telling me my shoulder was dislocated and I had to go to the ER. After several trips to the ER because of this, I didn't feel like doing it anymore. This time though, it seemed a bit more serious. I couldn't feel my ring finger or my pinky finger. They were slowly curling into the palm of my hand and I had no idea what was happening to me. At the time, I never imagined I would lose use of that hand completely....but I did. It makes me sick to think back on it and remember that no one knew what was happening. They thought it was from my shoulder. The orthopedic doctor I was supposed to see at Leominster Hospital had to leave because he was adopting twins the next day so I ended up seeing someone else. No one there knew what to do with me. It was like I had some bizarre disease that no one had ever seen but they cou

Today I had my third programming session. I am feeling pretty good. He turned it up quite a bit and I felt weird at first but my hand loosened up. Dr. Novak had his finger under my fingers and could feel when it got looser and tighter. He was pretty excited about it, as was I!! I might have to go back tomorrow or Friday, or both. I really think its going to work. Everytime I go, it makes me feel very energized and giggly. When he turns it way up I just want to crack up. Its kind of a bizarre feeling but I feel great. I also got my staples out today and the stitches out of my chest. The incision in my chest doesn;t look that great but they didn't seem concerned. Hopefully it clears up. Hailey is doing great. She is getting so big and trying so hard to crawl! I also think she's getting some teeth! She chew on everything and hasn't really been herself lately. Her and I are so excited to see Ryan on Friday. He's coming home for the weekened and we haven'

On Monday May 2nd, I had the second part of my DBS surgery. I got there at 6:15 and by 7:30 I was being wheeled into the operating room. I dont remember much after that until I was waking up in recovery. I had a severe headache so they gave me pain medications and wouldn't let my parents come see me. A little while later I had to go to the bathroom and did't want to go on the bedpan so they tried getting me up. I felt pretty dizzy and didn't feel that good so they tried laying me back down. I don't remember much after that except the nurse yelling "I need help" and there were 4 nurses picking me up. I must have blacked out. After that they gave me so many pain meds that they had to keep telling me to breath. It was very scary. My parents could finally come in after all of this and I was so happy to see them! My nurse wasn't the greatest but the nurse I had next was even worse. I had one nurse from 4-9 and she was absolutely terrible. She ca,e