Swimming Against The Current

The last few days have been the worst days I've had in a long time.  I was very hopeful and positive that I was getting better until this whole infection.  I had an MRI on Monday and they couldn't finish it because my head felt weird when they turned in on so I ended up having another CT scan.  The CT scan showed that the infection had spread and the whole device had to come out.  Tuesday morning, they took it out.  I am devastated.  My hand is already curled in and my feet have already been acting up on me.  I just don't know what to do, I am back at square one and just want to go back to FL with Ryan.  I was so looking forward to going back there and being better.  When the infection is gone I am going back there and when we move back I will have the DBS put back in.  There is only one problem.  My surgeon is moving and will be working in NY so I will have to go there to have it put back in and I'm not sure if my insurance will work there.  I am so upset but hopefully

On Tuesday I had a CT scan to rule out a blood clot in my brain because I have been having very bad headaches and dizziness.  There was no blood clot but there is swelling in there.  The doctors think the infection could have spread into the stimulator.  In cases like these, they usually remove the whole device.  I REALLY don't want them to do that.  Not only would I be upset because it has been helping me but I was planning on going back to FL the beginning of July and I really don't want to have another surgery.  They are waiting until Monday to do an MRI and go from there.  They said if I get any worse over the weekend I need to go to the ER but hopefully that won't happen.  Ryan's coming home tomorrow, my cousin is getting married Saturday and my nephews birthday party is Sunday! This weekend is a bad weekend to spend in the hospital!!

The IV is still in, and its still a pain in the butt. I started wearing an apron around the house so I could put the bottle of antibiotic in the pocket. I look a little foolish but I dont really care anymore!! My head looks much better then it did before they cleaned it out. I am so glad I called the doctor and got it all settled before the stimulator got infected. I am seeing an Infectious disease doctor tomorrow to make sure everything is all set and they just increased the dosage on my antibiotics so I hope it will be all over soon. I still have 3 1/2 weeks with it. I am hoping to go back to Florida after that so I can spend some time there with Ryan before we move back in September. My hand is still doing pretty good, my wrist is pretty much straight so I got rid of the hand brace!! It feels so good to have that off!!! My neck did get stuck once though and both feet have gotten stuck twice. I am a little nervous but I hope it doesn't keep happening. Hailey is doing g