A few days ago I went in for my 16th surgery. It was my third surgery on my hand. My hand is so screwed up and will never be normal again. The reason it got this bad was because it took a year and a half for someone to realize my DBS was broken. It makes me sick to think about it and to know that if it was fixed right away I wouldn’t be having these problems with my hand. I had a nerve block and at the end of the surgery it wore off, even though the nurses are telling me it worked great. I was screaming in pain because I could feel everything that was happening. I could feel someone grabbing my fingers that they just cut up. It was horrible. They ended up giving me pain medicine and sending me home. Last night I realized I have no feeling in my thumb. I’m hoping this is just part of the healing and I’ll eventually get it back. The pain is getting a little better each day and I know I’ll be fine but I don’t know if I’ll ever really be able to use my hand normally again. I’m tryi
My life-long battle with Dystonia