Look for something positive in each day, even if some days you have to look a little harder. Recently, my days have been hard and painful and its hard to stay positive but I have been trying very hard to find the good in every situation, even when it feels impossible. Back in October, when my dystonia symptoms started to flare up, I got discouraged but I had hope that things would get better. When the tingling in my head started and I had to shut my DBS off, I got scared and lost most of my positive attitude. When I had surgery in March, the tingling went away and once again I had hope. Unfortunately, that surgery didn't work and I was right back where I started, but without that feeling in my head. I tried to stay positive over the months, I called my doctor daily and I researched answers and treatments. Slowly I began to get discouraged again. I got tired of being in pain and tired of spending every day all day on the phone and realized I wasn't enjoying my lif
My life-long battle with Dystonia