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The thought of losing my hand

The thought of losing my hand never crossed my mind until my neurologist said I could lose it about six times in one visit. My fingers have been stuck in a fist for nearly two years and Ive had small blisters under the fingers but nothing like I have now. The weather is getting warmer and I think my skin is more sensitive because I am pregnant. I now have blisters in the whole inside of my hand and its very very painful. I have been trying very hard to keep gauze on it at all times to keep it dry but its not getting better. The problem is I have only lived in Florida for a year and my neurologist is in Massachusetts. He no longer takes my insurance, and neither does anyone here.
I want to hold my baby girl with both my hands, I want to hold her hand as she crosses the street, I want to braid her hair, change her diaper and teach her how to cheer. I do not want to lose my hand, and I won't. I'm working on finding a way to make it better...

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  1. Scary stuff, you will get better just keep the faith. I love you, mom xoxo

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