Skip to main content

My trip to Tampa

Today I had a doctor appointment in Tampa with a new neurologist. Since no one close by will take my insurance, I had to drive 2 1/2 hours to see a doctor for five minutes. First of all, I walked in and heard the doctor complaining to the receptionist about another patient. I thought it was very unprofessional and I hope she didn't do that after I left. She finally called me into the room, looked at me and said "what do you want me to do?" I thought she was the doctor, not me, but I told her my obgyn wanted me to be seen to make sure I was doing okay with the dystonia during my pregnancy. "I can't do anything for you while your pregnant," was her response. I knew right then and there that this visit was a waste of my time. She didn't examine me at all.
The good thing though, is that I will be able to go see her after the baby is born to get botox injections. She also sent me to an orthotics place to get a new brace. The guy there was very nice and gave me a new brace to wear temporarily. He thinks the bones in my wrist have fused together and I will probably never be able to straighten it again. He thinks the best thing would be to get a cast and get it adjusted every other day. Since the drive is unrealistic, I am going to someone in Fort Myers on Monday to see what they can do. If they don't have anything for me, the guy in Tampa is making me a custom brace and mailing it to me. So, we'll see what works!

Yesterday I went to the high risk doctor to get an eccocardiogram of the baby's heart and an ultrasound. The doctor said she couldnt look any better!! She is 3 lbs 3oz already!! He said I am a week and a half ahead of schedule so maybe she will come early =)

Comments

Post a Comment

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc
Post a Comment
Read more

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me get through the surgery and I was getting
13 comments
Read more

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able
8 comments
Read more