Skip to main content

So much for being positive

It's so hard to stay positive when everyone around you is negative. Everyone is sick, everyone is dying. Every time I turn on the news there are more shootings, stabbings and murders. What has this world come to?
I don't know how much longer I can take it. The pain is there worse than ever, constantly. Most people get annoyed with me when I talk about it so thats why I write, no one has to read it. When I don't talk about whats happening I end up in a bad mood all the time and just sit there and think to myself how much my body is aching and crippling. Sometimes I just want to let it out, to scream and cry and tell someone that I'm losing use of my entire body. I haven't been able to straighten my fingers for two and a half years and my wrist for a year and a half. I've completely lost my left hand and it kills me inside every time I think about it. I am sick and tired of wearing a brace on my hand, its uncomfortable, it looks ridiculous and its impossible to do anything. I can't stand it anymore!! I don't want sympathy, I don't want you to cry for me or to hold my hand, or to even say anything. I just have to let it out sometimes, I just want to feel good for a change.
When Hailey starts walking I want to hold her hand and help her learn. When she gives me a hug, I want to hug her back. When she puts her hands up for me to hold her, I want to pick her up. There are so many things I want to do with and for my baby girl that I am so scared I won't be able to do. I hope someday, somewhere, someone can fix this hand. :(

Comments

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me get through the surgery and I was getting

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able