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Decisions

Last week I went to MA for an appointment with my neurologist and with a neurosurgeon. My neurologist explained to me that DBS was my only option. We've tried so many medications and botox so many times and my symptoms never improved. Since Hailey was born, things have gotten worse and there is a lot of hope for me with this surgery.
I met with the neurosurgeon the next day who agreed with the DBS. She explained the surgery to me. I will have to be there at 6:30 am and the whole thing should be done by 1:30. I will need a frame put around my head and an MRI and CT scan. They will also need to shave my whole head. I will be put under anesthesia while they cut my head open but once its all set I will be awake when they put the electrodes in. I will need to spend 1-2 nights in the hospital and cannot lift anything for 2 weeks. One week after this surgery I will need to go back in to have the pacemaker put in. The wires from my brain will connect to the pacemaker and a few weeks later it will be turned out and the programming will begin.
The surgeon thinks I should have the surgery now because of how fast it is progressing and also because of Hailey's age. It will be much easier to take care of her when she is small then when she is walking. The problem is that Ryan's still in school. Now I just have to make the decision if I should do it now or when we move back to MA in September! It's a huge decision but I just want to get better. If I wait until September to plan it then I wouldn't have the surgery until October or November. What will I be like by then?

Now I'm just praying this all works out. I'll keep you all updated.

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