Skip to main content

DBS surgery 1

Monday morning I went in for the first part of my DBS surgery. It was a very scary morning. I went into the operating room and they put me to sleep to shave my head, do a CT scan and attach the frame to my head. I had to be awake after that so they woke me up and oh my god the pain in the back of my head was unbearable. I started crying that my head hurt so they gave me some pain meds and the pain went away right away. I remember the doctor moving my foot and arm all over the place and it was pretty tight. I kept saying I was freezing because it was so cold in there so they kept layering on the blankets. I asked the dr if he was almost done and he said not too much longer and shortly after that he said "We're turning it on!" So, they told me to move my foot and it felt so good to wiggle it. Then they said "How about your hand?" and I opened my fingers right up. I remember it perfectly and it was so amazing. They were very happy with the results. They put me back to sleep to close my head up and before I knew it I was waking up in the recovery room. I immediately wanted to tell my parents and Ryan the great news so I asked if they could come in. They all walked in with a smile because they had already heard from the doctor. I guess they were anxious to know if it worked. The nurse was wonderful and also let them sneak Hailey in to see me!! From recovery, I had to go to ICU for the night. It wasn't a bad night at all. I got sick once but felt pretty good after that and slept for almost 12 hours. When I woke up Tuesday morning, they let me get up to go to the bathroom and I was amazed at how good I felt. With my shoulder surgeries, I could never sleep and the pain was so bad I couldn't move much. I had a little headache but nothing tylenol didn't help. I had to go for an MRI Tuesday morning that wasn't much fun, but it wasn't too bad. After the MRI they let me walk out to the waiting room and sit with Hailey for a while. After that, they took the bandage off my head, took out my IV's and discharged me. By 3:00 Tuesday afternoon, I was already on my way home. Today, I feel great. The worst part about it is I can't lift Hailey. She can sit on my lap but someone has to put her there. I just want to pick her up. My next surgery is scheduled for Monday May 2nd and it should be turned on about a week after that. So, everything is looking good.

Also, the fundraiser was amazing. I just want to thank everyone again for all of your support, donations, and prayers. I couldn't have done it without you guys. I have some pretty amazing friends and family. I love you all!!

I'll update everyone after the next surgery!!

Comments

Post a Comment

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc
Post a Comment
Read more

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me get through the surgery and I was getting
13 comments
Read more

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able
8 comments
Read more