Skip to main content

Tough Ride but Positive thoughts

Well its been quite the ride here. Yesterday, I was planning on going home all day. Even though no doctor or anything came to see me until after 3pm, I was still hopeful. They kept telling me they were waiting for Infectious Disease to come tell me what antibiotics I have to go home with. I think he finally came just after 4:00 and said the infection wasn't that bad and I didn't need the picc line, just oral antibiotics. I was veery happy because now I could hold Hailey and get the hell out of here!! Once again, too good to be true. A few minutes later, the PA came in and said that the neurosurgery team didn't see eye to eye with Infectious disease and they still wanted me to have the picc line. They said I've come too far and they want to be aggressive and save this! I was happy with that because I feel I've come to far too and I do not want to start over!! So, anyway I didn't go home yesterday. They had to do some research to see what meds to send me home on since ID didn't give them one to give through an IV. Dr. Pilitsis came in this morning and said they are going to get me out of here! It looks like such a beautiful day out there, I really just want to go home and enjoy it with Ryan and Hailey!! Dr. Novak should be here this morning also to do some programming so hopefully my hand will continue to get better!!!
Its been tough being here for 5 days but I am glad they caught it early and I am still being positive and smiling because my hand is getting better!!!
Now, time for this awesome hospital breakfast... ugh.

Comments

Post a Comment

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc
Post a Comment
Read more

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me get through the surgery and I was getting
13 comments
Read more

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able
8 comments
Read more