I'm sorry to all of you who think I am complaining. I am not doing this to complain, I am doing this simply to help others. I feel that if people read my story, they will know what dystonia is like and people with dystonia who are thinking about DBS will know more about it. As bad as it was to get the infection and have the DBS taken out, it was a great experience because it worked and now I can have it done again but this time know what to expect. As far as my shoulder goes... I am desperately seeking some help. I would love it if I knew how to pop my shoulder back into place. Even when I have a shoulder subluxation not a dislocation it is very painful and wish I could just get some relief. So if anyone has any suggestions let me know!! :)
I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc
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