After a long battle with the insurance company, we have finally got things approved. My dad fought for me to get put on a PPO plan instead of an HMO so I could be covered out of network. Yesterday, he received a call telling him it all worked out and the surgery is all set. I'm pretty anxious and didn't sleep much last night. For some reason I never really thought it would happen. Now its all real and as happy as I am, I am scared to death. That feeling in my head after they drill that frame to me is sickening and thats all I can think of. But... I know this is all going to work out and I cant wait to have my hands back. I will hear more today, about a date and everything but I think its going to be either December 20th or 22nd. I am hoping for the 20th!! I'm not positive, but I think they will be doing both sides this time to help the dystonia on my right side too. I'll update everyone again when I hear more! Yay for good things happening, and 2012 is going to be a GREAT year, starting off with all my fingers! :)
Some days its hard to find the words to explain what dystonia feels like. It's invisible to most people, yet it shapes every hour of my day quietly, persistently and often painfully. I don't share this because I want sympathy, I share it because awareness matters and too many people still don't know what dystonia is, let alone how much it can affect someones life. Dystonia affects my hands, feet, back and neck. My hands ache as though they've been gripping something for hours, even when they're resting. My neck strains as if theres a weight hanging from it and no amount of stretching helps. My feet cramp and curl making sonething as simple as standing still feel like a test of endurance. I've grown stronger in ways I never expected. Ive learned patience, determination and resilience. Ive learned to celebrate small victories, like waking up with a little less stiffness or being abke to open a jar of spaghetti sauce. Im sharing this because I want people to under...
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