Often times we take for granted the amazing things in life. The feeling of being in love, the confidence when you get your license, graduating from high school or college and the magical feeling of Christmas morning. More times than not, we rush through life just to take up time while always "waiting" for the next big thing. It's been a long time since I have just enjoyed a typical day. I was always stressed out and couldn't wait until bed time just to get to the next day to do the same thing all over again. It was a habit, it was a routine, it was life...but it wasn't fun.
I was recently introduced to happiness again. I have learned to enjoy the sunrise every morning, take my time and enjoy every day with my children. I love watching the snow fall and how beautiful the trees look the morning after a storm.
The last few months have been excruciating but filled with happiness at the same time. I decided a while ago that I was going to go to school to be an LNA so I could get paid to stay home with Cody and take care of him. I never had the money to actually do it so it took me a long time but I finally just sucked it up and signed up in October. It was a 7 week class and I had the pleasure of working with a group of girls who were amazing. We supported each other through it all and last week, I passed my state exam. Tomorrow I have an interview to be hired to be Cody's LNA. I am so excited to start this new adventure.
My dystonia has been really acting up the last few months and its been hard to stay positive but with my family, friends and boyfriend Jim by my side I have managed to get through some pretty tough days. My body seems to want to do some crazy movements and cause a lot of pain. I have seen my doctors several times and no one really knows what is going on. A couple weeks ago I finally met with the neurosurgeon and the neurologist who is the head of the movement clinic at Brigham and Women's. They are both excellent doctors and really willing to help me. They scheduled me for an MRI to check the placement of the leads in my head and also to get botox in my arm and leg. I went in on Friday to have this done and unfortunately I wasn't able to have the MRI because there was a short circuit and it was unsafe. They did some x-rays instead and continued with the botox in my arm and leg. The plan now is to wait a few weeks and see if I see any improvement. From here, they will adjust my settings on my DBS and wait and see. In a couple months if there is no improvement, we will sit down and have the discussion about possibly adding another stimulator. I am hoping it doesn't come to that, but I am staying positive and I know this will work out for me in the long run.
Thank you for the continued support, and I hope everyone has a wonderful holiday season!
I was recently introduced to happiness again. I have learned to enjoy the sunrise every morning, take my time and enjoy every day with my children. I love watching the snow fall and how beautiful the trees look the morning after a storm.
The last few months have been excruciating but filled with happiness at the same time. I decided a while ago that I was going to go to school to be an LNA so I could get paid to stay home with Cody and take care of him. I never had the money to actually do it so it took me a long time but I finally just sucked it up and signed up in October. It was a 7 week class and I had the pleasure of working with a group of girls who were amazing. We supported each other through it all and last week, I passed my state exam. Tomorrow I have an interview to be hired to be Cody's LNA. I am so excited to start this new adventure.
My dystonia has been really acting up the last few months and its been hard to stay positive but with my family, friends and boyfriend Jim by my side I have managed to get through some pretty tough days. My body seems to want to do some crazy movements and cause a lot of pain. I have seen my doctors several times and no one really knows what is going on. A couple weeks ago I finally met with the neurosurgeon and the neurologist who is the head of the movement clinic at Brigham and Women's. They are both excellent doctors and really willing to help me. They scheduled me for an MRI to check the placement of the leads in my head and also to get botox in my arm and leg. I went in on Friday to have this done and unfortunately I wasn't able to have the MRI because there was a short circuit and it was unsafe. They did some x-rays instead and continued with the botox in my arm and leg. The plan now is to wait a few weeks and see if I see any improvement. From here, they will adjust my settings on my DBS and wait and see. In a couple months if there is no improvement, we will sit down and have the discussion about possibly adding another stimulator. I am hoping it doesn't come to that, but I am staying positive and I know this will work out for me in the long run.
Thank you for the continued support, and I hope everyone has a wonderful holiday season!
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