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Scariest adjustment

Yesterday was one of the scariest days I’ve ever had. I drove myself to Boston to have an adjustment on my DBS because my symptoms haven’t been improving. The doctor saw me right away and decided to try a totally different setting. He changed the frequency from 10 to 130 and the voltage to 3.0 and 3.5. When he turned the voltage any higher I started to have drooping in my face and couldn’t talk. I thought I was ok so I went home and was told to follow up in 2-3 weeks unless I noticed side effects.
By the time I got home my whole right side was weak, I was very slow in doing everything, was dragging my right leg and slurring my speech. My right side was twitching and spasming so bad I couldn’t sleep and ended up shutting the DBS off in the middle of the night. 
I called my neurologist and will be going back to Boston tomorrow to try this again. I’m getting extremely frustrated and losing my patience but trying my best to stay positive. 


Thank you for all the prayers. 

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