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Dystance4Dystonia

The Dystance4Dystonia walk is in about a month and 1/2 and I want to thank everyone who has donated or registered to walk.  I am now up to over $1200!  The goal is 7500, so I still have a long way to go but this is definately a good start. 
Just a few reminders to everyone who wants to walk or donate:
Only $25 for an individual to register to walk
$60 for a family to walk
Everyone that registers gets a tshirt
If you are pledging, you need to raise atleast $100 and I need the forms and money in atleast a few weeks ahead of time
I strongly suggest everyone sign up online and not wait until that day, I need an estimated head count 3 weeks before the event and if you sign up online, you get a tshirt
We have to order the tshirts and we will probably have a few extra but if you wait until the day of the event to sign up, we may not have enough or we may not have your size
We will have 50 children's tshirts to hand out
the walk is a 5k, so it is a little over 3 miles
If anyone wants to sponsor, please email me (asleeper14@yahoo.com) for more details...your companys logo will be on the back of the tshirts and depending on how much you donate, it will be free to walk for a certain amount of people.
I am looking for donations of healthy snacks and water if anyone knows someone who is willing to donate let me know.

Hope to see you all there, please email me for more information.

Comments

  1. bionicrunnerApril 9, 2012 at 11:28 AM

    Hey! My name is Nicole. I am a distance runner from Buffalo, NY. I have generalized dystonia and would love to get to know you - compare medical notes, etc. I've had DBS, get botox injections, and on 3 meds :-( It's tough... I'll through this I'm still trying to run. Dystance4Dystonia has always looked kind of cool to me, but somewhat confusing! I'd love to starte a 5k race in Buffalo.. we have a huge running population here... looking forward to meeting you. :-)

    ReplyDelete
  2. asleeperApril 11, 2012 at 2:57 PM

    Thank you so much for your interest, Nicole. Send me an email asleeper14@yahoo.com and we can get to know each other! :)

    ReplyDelete
  3. AnonymousApril 11, 2012 at 3:07 PM

    Hi, to both of you my son has Dystonia caused by anti-psychotic meds.. He isn't on any meds to control his movements. He's scheduled to see a neurologist, and I'm wondering which meds have helped you??? If you don't mind can you email me @ yalcasep@gmail.com
    thank you
    Yolanda

    ReplyDelete
  4. Shivam mittalDecember 30, 2020 at 12:21 AM

    Very informative blog you shared. keep sharing.
    Dystonia Treatment in UAE

    ReplyDelete

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