Skip to main content

Sunshine

There is something about the sun shining and music playing that always seems to make people in a good mood.  There is nothing more enjoyable then sitting outside in March in a tshirt watching my girl play in the grass.  Usually we have piles of dirt covered snow this time of year.  March is usually my least favorite month because I want it to be spring so badly but it seems so far away.  This year it came early, I think because I really needed it!  Life is so much better in flip flops!

I believe everyone in life has a purpose.  Some people were born to help sick people, some were born to fight for our freedom.  Some people were born to make people laugh, others were born to sing.  Some people were born to work and some people were born to have fun.  I have yet to find my purpose in life.  I want to do something big, I want to be strong and help others.  I want to make someone proud, be someones hero.  I want to write a book, and be the BEST mother possible to Hailey and all of my future kids.  I have a million things I want to do...and I WILL do them!!! 

My doctors appointments are becoming less frequent and I am beginning to feel better.  My wrist keeps getting stuck again but I will not let it happen permanently because there is nothing I hated more then that wrist brace.  My breathing is getting better and I am just learning some breathing techniques to help calm me down and not get so worked up about it. 

I really hope everyone can make the dystance4dystonia walk May 19th!!  All of the money goes to a great cause, to the Dystonia Foundation to help find a cure for people with all kinds of dystonia.  It affects so many people, and not a lot of people are aware of it.  Some people are in wheelchairs, some have feeding tubes.  It is a terrible thing that we need to stop!  Please help!!  Thank you in advance to everyone.  If anyone has any questions, needs a registration form, a pledge form, a flyer or a sponsorship form e-mail me and I can get that to you.  My email is asleeper14@yahoo.com  Also, anyone interested in childrens shirts let me know what size (sm, med, lg... no baby sizes)  All adults will get a shirt the day of the event with registration purchase. 

Comments

Post a Comment

Popular posts from this blog

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...
13 comments
Read more

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able ...
8 comments
Read more

Updates ❤️

It's 430 in the morning and i wake up to Max's whimper over the baby monitor. I get up to go get him and the first thing I notice is that I cant open the door. My left hand is so weak I cant turn the door knob. I try with my right hand even though I have no feeling in it. As the door opens my forearm goes into spasm and causes excrutiating pain. i've had quite a few problems with my arms and hands over the years, but this is the worst it's been. The Botox wasn't working so we tried a new medication called xeomin and my left hand seems to be opening a bit, but it's completely useless because it's so weak. I can't do anything with it. My right arm has been affected by the dystonia, but also I have carpal tunnel so the two of those together also makes doing anything very difficult. Hopefully a DBS adjustment will help soon. After Max was born, I was diagnosed with a pituitary macro prolactinoma. I didn't know what it was at first, but then found ou...
Post a Comment
Read more