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dystonia


I know I have been going off topic lately with my blog, which started out about dystonia but my family is just so much more fun to write about.  Anyway, here’s a little update about me.

As you may have read in my previous posts, my foot has been stuck since I was about 23 weeks pregnant.  My neurologist didn’t want to change my DBS settings while pregnant because they didn’t know what the risks would be to the baby.  I sucked it up and now my baby is 6 weeks old and I still have not seen anyone!  I am trying to get in to see my doctor but he is on vacation all month.  He said I could see someone else in the office but I can’t get through to talk to anyone.  I have adjusted to my foot like this and found shoes I can wear but they are winter clogs and I have already had to buy a new pair because they were so worn out.  Once the warm weather comes, I would really like to wear flip flops!! 

Other then my foot, I have had some issues with my jaw.  The right side of my face hurts really bad sometimes when I eat and swells a little.  It comes and goes though so sometimes I have no problems at all.  My hand has been great until today.  I woke up and my left hand felt really crampy.  I thought I had slept on it or something but then I could feel my fingers tightening and pulling in.  I tried massaging it and now my hand is in a fist again.  Hopefully I will hear from the doctor soon so I can get these problems fixed.  I think the more stressed I am, the worse my spasms are and it is very stressful having my little baby boy have heart issues. 

Lets all pray that everything works out and we all get better soon!!!

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