Skip to main content

My little Cody

Have you ever sat in a waiting room while your child is in surgery?  Staring at the clock, looking at your phone, trying to read a magazine but your not comprehending anything your reading. By 10:00 you've had 3 coffees and barely any food because your child couldn't eat, so why would you.  Hours pass and you pace the hallways, stare at the other families as the doctors come get them and tell them their child is ok.  The longest days of my life are the days my child goes in for surgery.  The minutes pass like hours and the anxiety within me is unbearable. 
Just thinking about another one of these days scares me.  It's not about me.  It's about my poor little Cody.  He doesn't know what's going on, but yet he does.  He's starting to realize what surgery means and he is starting to ask every family member if they will visit him.
The minutes after the surgery is over is the scariest.  It's always the same.  They come get me and tell me he's fine and sleeping it off.  I walk into the recovery room shaking in fear and my poor baby lies there sleeping and gasping.  His breathing is never good and I'll never understand why they tell me he's fine.  Over time, as he starts to wake up and cough and choke and his oxygen goes down slightly and I hear that squeaky stridor breathing then they start to worry.  But they never listen when I tell them this happens EVERY SINGLE TIME. Now that he is 4 and this will be his 12th surgery, I think maybe they will listen when I tell them to watch for his breathing issues and he will not be going home that day.
So I have a week and a half to pull it together for my boy.  A week and a half to stand strong and believe that everything will be ok.  A week and a half to mentally prepare myself to stare at those white walls for hours praying for this to go well and to help him talk and eat.  A week and a half to think about how brave Cody's always been and to become just as brave myself.
Cody is the strongest boy I'll ever know.  What he's gone through in 4 years is more then most people go through their entire life. Every single day, though, Cody wakes up with a smile.  Every thing he says he does so in his silly jokingly way.  Everyone he meets, he makes them laugh. He works so incredibly hard to succeed in everything.  He is amazingly smart and although his speech is delayed, he pushes himself so hard to say anything and everything he wants to say.  No matter how many times we go to the hospital, he doesn't let it bring him down.  He loves the doctors and nurses and makes the best out of every day.  I am so proud of the boy that he is.  He has taught me about strength and courage and how to be brave.  He has taught me to enjoy every moment of every day and always try to make people smile.  He has taught me that no matter what you go through in life, you can still succeed and be happy.  He has taught me about love and laughter and most importantly how to live each day to the fullest and not take anything for granted.

Comments

Popular posts from this blog

When Pineapple socks aren’t enough

I wake up in the morning, get my kids ready for school, make my husband and I a cup of coffee and take three small pills. When you look at them you’d never imagine what they could do to your body but right from the beginning I was willing to do it. No matter what it took, I would do it. Little did I know, these pills would just be another part of the sadness. I continue on my day, limiting caffeine, watching what I eat and gaining a pound a minute. Before bed, Jim injects more medication into my buttocks. These medications are supposed to be getting my body ready to have a baby but for some reason this small thing that I want so badly is so hard to achieve. Since the day I met Jim, we’ve wanted a baby. We’ve picked out names, first outfits, and ways we want to tell our parents the news. It’s been 4 years since we agreed we wanted to start trying and we still don’t have it. Just before Covid hit, we decided to see a fertility specialist to help us achieve pregnancy. We tracked my cyc

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me get through the surgery and I was getting

Pregnant With Dystonia

Well, hello there and welcome to my blog. These last couple months have been stressful, exciting, painful, happy and scary. I'm working on keeping these feelings positive! A couple of years ago I was diagnosed with Dystonia. My left hand has curled into a fist and I can no longer use my fingers. My wrist is permanantly stuck in a spasm and I now wear a brace 24/7. I get daily spasms in my feet and sometimes its hard to walk because I don't know when it is going to happen. I have muscle spasms in my back quite often and occassionally in my neck and jaw. On top of the dystonia, I have multi-directional instability in both of my shoulders, causing them to dislocate very frequently. In February, 2010 I took a home pregnancy test and it was positive! It was the greatest thing that has ever happened to me. Although my boyfriend and I were a little nervous, we smiled and started to plan our life together with our baby that was on the way. Since then, I haven't been able