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Dystonia Awareness

September is Dystonia Awareness Month so I wanted to share a little about how my dystonia has recently been affecting me. 

It's like a flash back to when I was pregnant with Cody.  My left foot got stuck and I was trapped the whole 9 months because I couldn't have my DBS settings changed.  My foot is exactly the same now.  I am having a very hard time walking and my whole left leg/foot is throbbing.  My left hand is also stuck and I am unable to open it and use it at all. 

This hasn't happened in a long time.  Sometimes, I'll have a "spasm" here and there that usually gets better with time and rest.  This has been on going.  Last week it was my neck.  I checked my batteries for my DBS and they seem to be fine so I feel like it must be stress related.  I'm working on trying to relax and rest and get in to see my neurologist as soon as possible. 

Thank goodness I have my beautiful children to give me strength to get through times like these.  Friday will be my last day at work and in a couple weeks Cody will be going in for yet another surgery.  Once Cody is healed and feeling better, my plan is to take an LNA course so I can get paid to be home with him.  I am praying this all works out as planned so I can get on my feet and start pushing for all my dreams.

Although I'm stressed, life has been amazing.  I haven't been this happy in a very long time.  I find myself laughing so much more, and enjoying the little things in life.  I am so thankful for all my family and friends who have stood by me during the roughest parts of my life and helped pick me up and get me back to where I belong.  I honestly feel like I'm starting to be the person I used to be again, and I am so proud of that.  It's time to start standing up and being strong and living this beautiful life the way I should be!

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