Skip to main content

My sweet Hailey

Seven years ago, I was preparing myself to become a mother for the first time.  After going into labor twice, having it stopped and being put on bed rest for a couple weeks, Hailey decided by her due date she didn't actually want to come out yet.  I knew at that moment she would do all things on her own time. 
On September 29, 2010 I was induced at 6am.  After 12 1/2 hours of labor, she made her appearance.  I fell in love immediately with her gorgeous, round pink face.  She had a head full of dark hair and beautiful blue sparling eyes. 
Within Hailey's first year of life, she learned her first words ("hungry" being one of them), she learned to giggle, sit, crawl, stand, and walk. 
We tried to take her pacifier away many times with no success.  We even cut it and by the end there nothing there but she still chewed on it.  At 2 1/2, Hailey decided to just throw it away and she didn't ask for it again.  This was one of the first things she did that made us realize she would always be doing things on her own time. 
When it was time to potty train, we tried and tried and she showed no interest and no success.  At 3 1/2, Hailey decided she would use the potty.  After maybe one or two accidents, she was completely trained and has never had an accident since, not even over night.  Once again, just doing things when she's ready.
Over the years, Hailey has grown up into such a beautiful and smart little girl.  She has showed me how strong of a person she is by dealing with so much in her short little life.  At 4, she had her tonsils and adenoids out and fought through it like a champion.  She has had surgery to fix her teeth, which was rough but she did great.  For the last 4 1/2 years, she has had to watch Cody through 12 surgeries, multiple admissions and sicknesses and sit through more therapy than anyone should have to at that age.  Although she worries a lot, she has that big toothless grin on her face most of every day.  Her laugh is so contagious and she is such a caring daughter, sister, cousin and friend.
This year, Hailey tried Tball for the first time and absolutely loved it.  She also started first grade and is doing amazing.  Her favorite part about school is gym and buying lunch! 
Tomorrow, Hailey will be seven years old.  She amazes me every day with her courage, her love, and her willingness to learn new things.  Hailey wants to be a singer and a vet when she grows up, she loves singing bob seger, dancing, hugging and kissing, reading, and playing with Cody.  She is an amazing little girl, and I hope she has the best birthday she's ever had!

Comments

Popular posts from this blog

update on Dystonia and Family

I have been doing as well as could be expected.  I am back in Florida so it's nice to be with Ryan.  Although I am still upset about the whole thing, I am trying hard to smile and not let it show.  The spasms have returned and have gotten worse since the DBS was removed.  When I suck on a piece of candy or ice, my throat tightens up.  It's very scary but Im hoping it won't get any worse.  My neck also twitches sometimes and my foot spasms have come back.  My hand is curled in but if I think about it, I can straighten my wrist (not my fingers).  The most upsetting part is that I was just looking at pictures of myself the day after DBS and I had a huge smile on my face because I had made it through and then a couple weeks later there was a picture of my hand open.  I had never been so excited as I was that day.  I had so much in my head that I wanted to do now that I could use my hand and most of it involved Hailey.  Hailey helped me ...

Updates ❤️

It's 430 in the morning and i wake up to Max's whimper over the baby monitor. I get up to go get him and the first thing I notice is that I cant open the door. My left hand is so weak I cant turn the door knob. I try with my right hand even though I have no feeling in it. As the door opens my forearm goes into spasm and causes excrutiating pain. i've had quite a few problems with my arms and hands over the years, but this is the worst it's been. The Botox wasn't working so we tried a new medication called xeomin and my left hand seems to be opening a bit, but it's completely useless because it's so weak. I can't do anything with it. My right arm has been affected by the dystonia, but also I have carpal tunnel so the two of those together also makes doing anything very difficult. Hopefully a DBS adjustment will help soon. After Max was born, I was diagnosed with a pituitary macro prolactinoma. I didn't know what it was at first, but then found ou...

Be the best you that you can be

A few months ago I was feeling pretty lousy and every day I was noticing new symptoms. I was so exhausted I could barely drive and staying up to watch a show or play a game with Jim was impossible. My eyes started giving me problems and I was getting dizzy quite frequently. When I tried to read, all the words in a paragraph bunched up into one big blur. I was overweight but couldn't find the motivation to even walk to my mailbox to try to lose some weight. It was the worst I ever felt and it was causing me to be miserable and not be the mother and wife I needed or wanted to be. I had an appointment scheduled for a physical so I decided to talk to my doctor. She told me that fatigue can be caused from so many things and she would do some blood work but she suspected it was just from having a baby and getting muscle spasms from my dystonia. I knew it was more than that but figured I would just wait and see what the blood work showed. Not long after my appointment I started gettin...